The Part of Scoliosis and Spinal Fusion That Is Really Hard to Talk About

The future is hard to talk about, because it’s largely unknown. I have no idea what to expect in the next 10 years. I have no idea what to expect the older I get. I’ve searched for answers. I’ve looked through medical research, but there doesn’t seem to be a clear picture as to what the future holds for people who have had scoliosis spinal fusion.
To make it easier for myself and for anyone else searching for answers about spinal fusion, here’s an infographic I created based on the statistics that I found in various medical journals:

The part of scoliosis and spinal fusion that is really hard to talk about.png


13 thoughts on “The Part of Scoliosis and Spinal Fusion That Is Really Hard to Talk About

  1. Thanks for sharing this is really interesting. I feel like spinal fusion has come such a long way even in the past 20 years. I am 10 years post surgery this year – for a correction of an 83deg curve. The biggest part for me was learning to deal with it and that my life had changed. I am proud of what I have achieved and think my strength and ambition has a lot to do with what I have been through.
    I know you are trying to share the risks and ensure people making a decision know, but I think it would be worthwhile throwing in a few good facts about surgery, I am sure the internet must be full of them too!

  2. Thanks for the great idea! I think it would be a really helpful post. If you find any useful information about long-term positive outcomes about scoliosis spinal fusion please feel free to share it with me.

  3. I know of a distant cousin of mine who had the surgery back when people still had to stay in a body cast afterward. She had two children, and she does not have any complications that I know of. She is probably in her late fifties or early sixties now. I do wish there were more specific research on what happens later in life. It seems like once doctors perform the surgery, they feel like their job with the patient is over. On the other hand, I really do not want to live my life thinking about the negatives that could happen. I try to take one day at a time because life is tough enough as it is without adding worry on top of it (lol). Some days I do get angry that pain and discomfort are part of my everyday existence, and other days I remind myself that the surgery probably saved my life.

    1. Oh wow! This is so encouraging! I’m doing really great so far. I’m currently 28 weeks pregnant and I walk every day and do a maternity workout — I think it has helped me. It’s nice to know other people have done it and are doing well way after it. How are you doing? How old are your kids?

      1. Oh, man, it is getting so hard. My hips and rib hump area are killing me. 34 weeks now and I’m not sure how I am going to make it to 40!

      2. Be ready early just in case. I ended up having my son early, and I was not prepared at all because I thought I would have more time!

      3. I ended up in the hospital 6 1/2 weeks early because of preeclampsia, and I had him five weeks early through an emergency c-section.

      4. Hello Mama Muse! I need to write an update, but being a new mom, I have no time! I ended up almost dying. I lost about 4 liters of blood and had to have major surgery. Hope you’re doing well 🙂

      5. Wow, I almost died toward the end of my pregnancy too, but it was because of preeclampsia. It sounds like something different happened for you. It can be really traumatic when birth goes that way, so I hope you are doing okay. I know I had anxiety for awhile after I was out of the hospital because of all the trauma I went through. It was still worth it for my little man. I hope your baby is doing amazing.

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